Individuals and families facing hereditary cancer and cancer risk have unique informational and support needs. There are many organizations that provide information and support programming, including support groups and peer-to-peer matching, for specific types of cancers or diagnoses.
Hereditary Cancer Risk Resources
Bright Pink is the only national non-profit organization focused on prevention and early detection of breast and ovarian cancer in young women.
Facing Our Risk of Cancer Empowered
FORCE provides support, education and awareness to help those facing hereditary breast and ovarian cancer know their options and make informed decisions.
Oneinforty is a nonprofit organization dedicated to stopping BRCA-related cancer in its tracks. To advance this mission, Oneinforty raises awareness among Ashkenazi Jews of their high risk of inheriting cancer-causing BRCA gene mutations and provides the support individuals and families need to face this risk, prevent cancer and detect cancer early.
Pink Hope, based in Australia, is a preventative health organization working to ensure every individual can assess, manage and reduce their risk of breast and ovarian cancer, while providing personalized support for at risk women.
Breast Cancer Resources
Breast Cancer Research Foundation
The Breast Cancer Research Foundation is a nonprofit organization committed to achieving prevention and a cure for breast cancer.
Breastcancer.org is a nonprofit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer.
HIS Breast Cancer Awareness
Founded in 2009 by a BRCA2 positive brother and sister who have both been diagnosed with breast cancer, HIS Breast Cancer Awareness assists men and women (girlfriends, wives, sisters & brothers, mothers & fathers, and friends), health care professionals, and anyone who is interested in learning about the risk, treatment(s), emotional aspect and stigmatism of men dealing with this disease.
Living Beyond Breast Cancer
Living Beyond Breast Cancer provides programs and services to help people whose lives have been impacted by breast cancer.
Male Breast Cancer Coalition
The Male Breast Cancer Coalition (MBCC), a not-for-profit patient advocacy organization, brings everyone together to educate the world about male breast cancer.
Sharsheret, Hebrew for “chain”, is a national not-for-profit organization supporting young women and their families, of all Jewish backgrounds, facing breast cancer.
Sisters Network® Inc
Sisters Network® Inc. is committed to increasing local and national attention to the devastating impact that breast cancer has in the African American community.
Susan G. Komen
Susan G. Komen is dedicated to education and research about causes, treatment, and the search for a cure and also leads the Komen Race for the Cure® and Susan G. Komen 3-Day™ events in cities across the country.
Triple Negative Breast Cancer Foundation
The Triple Negative Breast Cancer Foundation® is dedicated to supporting TNBC-specific research and to providing meaningful programs and services to the TNBC community.
Young Survival Coalition
Young Survival Coalition (YSC) is dedicated to the critical issues unique to young women who are diagnosed with breast cancer.
Ovarian Cancer Resources
Ovarian Cancer Research Fund Alliance
OCRFA’s mission is to promote, advocate for and support scientific research as it relates to the causes, prevention, diagnosis, treatment, and cure for ovarian cancer; to provide education about ovarian cancer; to promote, advocate for and provide supportive services to persons affected by ovarian cancer; and to foster alliances to further those purposes.
National Ovarian Cancer Coalition
NOCC's goal is to educate communities and increase awareness about the symptoms of ovarian cancer. The NOCC also provides information to assist newly-diagnosed patients, hope to Survivors, and support to caregivers. The NOCC is also committed to the advancement of ovarian cancer research.
Tell Every Amazing Lady About Ovarian Cancer Louisa M. McGregor Ovarian Cancer
T.E.A.L.®'s mission is to promote public awareness and education of the signs, symptoms and risk factors of ovarian cancer, while providing free support to survivors and caregivers and raising funds for research in order to find the cure for ovarian cancer.
Ovarian Cancer Action
Ovarian Cancer Action is a UK charity dedicated to beating one of the most common cancers in women. Their mission is to empower women and to create a better future for the thousands of mothers, partners, sisters, daughters and friends affected by this disease through funding life-saving research, promoting screening programs, raising awareness, and more.
Pancreatic Cancer Resources
Let’s Win is a platform that enables patients, doctors, and researchers to share fast-breaking information on potentially life-saving pancreatic cancer treatments and trials that go beyond the standard of care.
The mission of the Lustgarten Foundation is advancing scientific and medical research related to the diagnosis, treatment, cure and prevention of pancreatic cancer.
Pancreatic Cancer Action Network
The Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.
Prostate Cancer Resources
Prostate Cancer Foundation
The Prostate Cancer Foundation is the world’s leading philanthropic organization funding and accelerating prostate cancer research.
Melanoma Research Foundation
The Melanoma Research Foundation is the largest independent organization devoted to melanoma.
General Cancer and Health Resources
American Cancer Society
The American Cancer Society is a nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem.
Cancer Support Community
As the largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. CSC achieves its mission through three areas: direct service delivery, research and advocacy.
MyJewishGeneticHealth.com is a free, ongoing, online educational series that is designed for the Jewish community.
Penn Medicine’s Oncolink was the first cancer information website on the Internet, started in 1994, and remains one of the largest. OncoLink’s content is continually updated and ranges from treatment and disease information for a newly diagnosed patient, support through the side effects of treatment, and into survivorship.
Penn Medicine LGBT Health Program
The Penn Medicine Program for Lesbian, Gay, Bisexual and Transgender (LGBT) Health is dedicated to improving the health of all LGBT people.
Program for Jewish Genetic Health
The Program for Jewish Genetic Health, affiliated with Montefiore Medical Center and Albert Einstein College of Medicine, was established to meet the genetic health needs of the Jewish community, and to adapt and evolve as these needs grow and change.
Financial & Legal Support
Cancer Legal Resource Center
The Cancer Legal Resource Center (CLRC) provides information and education about cancer-related legal issues to the public through its national telephone assistance line.
National Breast and Cervical Cancer Early Detection Program
For more than 20 years, CDC’s National Breast and Cervical Cancer Early Detection Program (NBCCEDP) has provided low-income, uninsured, and underserved women access to timely breast and cervical cancer screening and diagnostic services.
Penn Medicine Breast Health Initiative
The Penn Medicine Breast Health Initiative is a patient navigation program that offers free breast cancer screening and diagnostic services to those who are 40 years and older and uninsured or under-insured. Individuals at high risk for breast cancer may also qualify for services.
Right Action for Women
Right Action for Women provides assistance to women who are at increased risk for breast cancer and do not have insurance or the financial flexibility to cover the high costs associated with breast screenings.